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[BOINCstats] Willy
 
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2021-06-07 17:54:57

last week I was diagnosed with two malignant tumors in my back.

Starting tomorrow they will do several tests to see if it has metastasized and what kind of tumors they are. After that they will start the treatment.

I am convinced that I will survive this but I am definitely going to have a hard time.

There will be times when I'll respond slowly or not at all.

Should the need arise I'll ask for help from the community.

I will keep you informed of important developments.
Please do not PM, IM or email me for support (they will go unread/ignored). Use the forum for support.
Dr Who Fan
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2021-06-08 02:43:20

Wishing you a good prognosis and a speedy recovery.
We will try to behave while you are away and will be cheering for your recovery.

Odd-Rod
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2021-06-08 07:29:22

That's not good news.

As someone who has had a cancer scare (melanoma) I can understand the kind of thoughts and worries that you will be having now. Your positive attitude will go a long way in helping you get over this.
Please let this site take second place to your health.

Regards
Rod
TeeVeeEss
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2021-06-09 20:29:09

Your health and family are way more important than this site. It would be an honor to help you whenever needed.
[BOINCstats] Willy
 
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2021-06-24 16:14:12
last modified: 2021-07-15 07:21:42

After some more tests it is determined that my tumor is a synovio sarcoma. Only 50 people get this diagnoses in the Netherlands per year. As long as there are no metastases I'll have a chance to survive this but if there are then there is no hope of recovery. I'll hear more next week.
Please do not PM, IM or email me for support (they will go unread/ignored). Use the forum for support.
[BOINCstats] Willy
 
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2021-06-29 11:17:59

I'm going to get chemo therapy. Six sessions of five days in the hospital. After that surgery to remove what's left and then radiation therapy.
Please do not PM, IM or email me for support (they will go unread/ignored). Use the forum for support.
Odd-Rod
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2021-06-29 14:10:31

[BOINCstats Willy wrote:

I'm going to get chemo therapy. Six sessions of five days in the hospital. After that surgery to remove what's left and then radiation therapy.

That sounds like there's hope at least. Keeping you in my thoughts and prayers.
Dataman
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2021-07-14 14:25:26

Best wishes from BOINC@Australia and myself for a speedy and complete recovery.
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2021-07-14 14:45:52
last modified: 2021-07-14 14:46:14

Hope everything goes well and there is a good outcome. Our thoughts at BOINC@AUSTRALIA will be with you.




Don't forget to look at my web cam
James Bradshaw
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2021-07-14 23:53:55

Any computer jock that has a feathered assistant that sits on his head and writes code for you can overcome any challenge, defeat any foe, and come out the winner. You are absolutely a winner and will overcome this challenge just as you have resolved all the issues that the BOINC crowed has thrown at you! You will get well, our friend, for sure.......
[BOINCstats] Willy
 
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2021-07-15 07:28:45

Thanks to everyone, in this thread or otherwise, who has wished me well.

I had my first round of chemo last week. Since I'm also in a lot of pain (the tumor presses against nerves in my spine) the doctors decided to take me off pills and give me a morphine pump. Initially they gave me a too high dosis which made me a zombie for a couple of days. They changed the dosis and within a day I recovered from that but then I had to deal with the side effects of the chemo. Yesterday was the first day I wasn't sick from the side effects. Still have a very dry mouth and a rough palate all day round.
Please do not PM, IM or email me for support (they will go unread/ignored). Use the forum for support.
tazzduke
 
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2021-07-15 11:40:08

Greetings and well wishes for a complete recovery from me and my family.

Farscape
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2021-07-15 16:48:37
last modified: 2021-07-15 16:49:16

Willy - my daughter is going through Chemo for small cell lung cancer (2nd round) - I empathize completely with what you are going through.
Remain positive and in good spirits - we are rooting for your recovery and in our prayers!
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Mads Nissen
 
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2021-07-15 21:14:10
last modified: 2021-07-15 21:15:17

I hope you will get better soon and greetings from Bulgaria

TankbusterGames
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2021-07-15 21:20:26

I hope you will get better.
Guest

2021-07-18 11:11:41

Best of luck and good health Willy.

I'm just out of 5 emergency days from the hospital myself. Intestinal problems. I was feeling a bit sorry for myself. Not so much now.

Stay upbeat.

Cheers,
Mike
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2021-07-31 19:01:53

So appreciative of all that you do Willy, my best regards are for your health.
Megacruncher TSBT
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2021-08-12 11:48:12

Just caught up with this thread after a few weeks away. I'm very sorry to hear about your illness Willy. All best wishes to you for a full & speedy recovery.
Cheers
Willie
[BOINCstats] Willy
 
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2021-08-31 12:36:49
last modified: 2021-09-01 07:12:51

Just got an interim diagnosis and the tumor is shrinking. I'll have to continue the chemo therapies and after the fifth one there will be more tests to determine what to do next.
Please do not PM, IM or email me for support (they will go unread/ignored). Use the forum for support.
Zydor
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2021-08-31 14:06:12

..... the tumor is shrinking .....
Great news .... hang in there Willy ....
ruidocarmo
 
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2021-08-31 18:53:39

Really great news!
Hope your fight continue running in the right way.
Stay strong and confident!

Cheers,
Rui
Mads Nissen
 
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2021-09-01 06:35:50

[BOINCstats Willy wrote:

Just got an interim diagnosis and the tumor is shrinking. I'll have to continue the chemo therapies and after the fif6 one there will be more tests to determine what to do next.


sounds good willy, I wish you the best and hope you are soon over it all and are on your feet again
YAG
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2021-09-12 07:00:54

Very good news. The treatment is really hard, but you will regain your previous life, I am sure.
[BOINCstats] Willy
 
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2021-11-26 16:31:29

A week after my fifth chemo therapy I got very sick. I was rushed to the hospital where I had to stay over a week. I wasn't able to speak, to swallow, my throat hurt very much and I had a fever (at the highest point 39.5C). This all was caused by the chemo and according to the doctors said it was more dangerous than the tumor I have. At that point it was decided that the sixth and last chemo therapy wouldn't go through.

I am now getting radiation therapy. 25 treatments on working days so five weeks, just finished my second week. This seems to be going well, I do not have any meaningful side effects yet.

After the radiation therapy I have to regain my strength for about a month and then I have surgery. The surgery will take four hours. They will open the muscle in my back to remove the remains of the tumor. Because the tumor has also infiltrated a vertebra, a piece of that will also be removed. After the surgery I will have to stay in the hospital for a couple of days to get physical therapy.

There will be some lasting side effects. A numb feeling in my side and I won't be able to pull my right leg all the way up. Still better than the alternative.

Just one problem: the hospitals are overwhelmed with COVID patients and the surgent has warned me that my surgery may be postponed. No idea for how long.
Please do not PM, IM or email me for support (they will go unread/ignored). Use the forum for support.
Mads Nissen
 
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2021-11-26 16:40:59

Hi Willy, good to hear that your health is improving and hope you can return to your familiar surroundings soon
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